Sunday, July 28, 2013


Someone asked me recently, if I were given one day in which I had the opportunity to live disability free, how would I spend my day?  I guess it's silly because I know it can't happen.  There's no magic pill.  My CP is a part of me.  Without it, I would be an entirely different person.  My interests would probably be different too.  I have been disabled all of my life. Believe or not, the thought of not having my disability is scary because it's all I know.  However, having said that, I have to admit the question was a thought provoking one.

My first thought was I'd fly to California.  Some the best vacations I have ever had were trips to California.  I have always loved reading about France too, but never had the opportunity to go there.  Realizing both trips would take a lot more time than one day; I tried to think of something else.

The answer I came up with is a simple one.  I would spend the day taking care of myself.  I'd do all the things an able-bodied person takes for granted.  I'd get up in the morning, get dressed and get myself to the bathroom.  I'd spend my day free of caregivers. 

I have to plan everything.  I go out when I have a caregiver to drive me.  I am lucky I don't have to rely on public transportation because, as I may have mentioned in a previous post, transportation for the disabled has to be arranged several days in advance. It is also not dependable.

In order to stay alone for short periods of time, I even have to plan when I go to the bathroom.  I am sure not many able-bodied people have had to do that. 

Tomorrow morning, when you are getting dressed, stop for a moment and remember how fortunate you are not to have to rely on others to assist you. Don't take the little things for granted.  Circumstances can change in the blink of an eye.  Be thankful and grateful for the life you have. Even the struggles.  I know I am.