Monday, October 19, 2015


My Kindle was stolen last Thursday. I got up. I checked my email as I do every morning. The pink bag, with the Kindle inside, was on my desk. The power cord was plugged into the base. By noon all of it was gone. I want to thank the administrator of this facility for doing all they could to locate my Kindle. I want to thank my family for calling the police so that I could file  a police report. It has  been four days. I must accept that my Kindle is gone. The administrator has ordered a replacement. In a few days it will be as though the incident never happened. I appreciate that my Kindle is being replaced more than I can say, but is that really a solution?

I understand that it is a state law that the rooms of resident's cannot be locked because staff needs to be able to get to residents in an emergency. However, I think that if  a resident is not in their room and their door is closed, their privacy should be respected. Anyone can walk into a room at any time. I came back from the library one day to find a man I had never seen before washing the windows in my room. I realize this needed to be done, but it was still unnerving to find someone  I'd never seen before in my room. 

The disabled and elderly population are easy targets. I had irreplaceable things stolen from me when I lived at home too.  

Wherever my Kindle is,  I hope someone is enjoying using it as much as I did. Whoever has it will have to answer to God someday.

I hope that in the future facilities will find a way to respect and protect a resident's privacy a little better. Our rooms should be our castles. 

Wednesday, October 14, 2015


It has been one year since I've had to move into a facility. I am sure you can understand why it is not a happy anniversary for me. However, I thought I should write something about it because a year is three hundred and sixty-five days. In that amount of time  I hope I have learned something that is interesting enough for me to blog about. 

I have learned  that my needs are no more important than anyone else's here. I am one of twenty-four. We all need care. I must wait my turn. 

I have learned how to be transferred using a stand-up lift. This was scary for a while. After being strapped in you are supported so your aide can just roll you from place to place.

I have learned not to get used to the same person caring for me. People come and go. You have to go with the flow. This is difficult for me because every time I have a new aide, I must start over explaining what my needs are.  

I have learned I have very little privacy.From laundry to the aides,  people come in whenever they need to.  People have come in sometimes when i am being given a shower. They act like I am not even there.  They would carry on a conversation with the person helping me.

I have learned that to some aides it's just a job. They just want to do their job and go home. There are some very kind,  empathetic aides too who do there best to help and understand. We need more aides like that.

I have learned the importance of family and friends. My family does whatever i need them to do. They are always there for me. i am thankful for my supportive friends. I couldn't make it in here with the support of family and friends. I always appreciate your visits.

I have learned how to travel using public transportation for the disabled. I know how fortunate I am to be able to  go out into the community. Some residents never get to go out.

I have learned to turn my circumstances into something positive.  By writing essays.I can use my VOYCE to help promote change.

The most important thing I have learned in the the year I have been here is... I am a survivor.