Thursday, January 28, 2016


I received an email from the Cerebral Palsy Foundation.  In conjunction with their "Just Say Hi" Campaign, which shows videos of people with CP as well as non disabled people telling the best ways to start a conversation with someone who has a disability.(For me the best way to start a conversation is to say hi. Then, tell me what your favorite book, classic television show or Cher song is.) They also wanted  to know how Cerebral Palsy impacts your life. There was a blank space on the submission form for my story, but I felt it was a good blog topic. I hope no one at the CPF will mind.

I have Spastic Cerebral Palsy. All  four of my limbs are affected.I have been given the label of Severely Disabled. When I was little friends were able to walk with crutches. They tried to teach me how to walk with crutches, but because I didn't have balance, if the therapist lot go of me I would fall. I need assistance with just about everything. And, because, many people with Cerebral Palsy are mentally challenged as well, I am constantly having to prove to others that I have a good mind and make my own decisions. All of this sucks. 

Some days I deal with my limitations better than others. But there is one thing that is the most difficult for me to deal with. Not being able to take myself to the bathroom. That is the worst part of having CP for me. It limits what I can do. Sometimes it takes forever for someone to come and help me/ It is so frustrating. There are some days when having CP is exhausting both physically and emotionally.

I am thankful that even though I have CP, God gave me a good mind. I  can think and put my thoughts and ideas in this blog and share them with you.

I think having CP has made me more sensitive to the struggles others may be having. I accept peoples differences. We can learn something new everyday from someone else. We just have to listen.

People have told me how much I inspire them. That makes me feel uncomfortable. I am not doing anything that unique or special. I am just living my life.  Just like all of you.

Having CP and living in a facility has made me appreciate the assistance I receive  from the staff. I hope I am more humble. I took the help I received, when I lived in my house,  for granted.  I take nothing for granted now. And, I never forget to say thank you to anyone helping me.

My CP is neither a blessing or a curse. It is my disability.I continue to deal with it and learn new things from it everyday.