Saturday, August 27, 2022

ZAPATOS


My therapist had faith in me. She believed in me. She supported me. She never blamed me. She showed me I was worth it when  I did not think I had any value at all. 

She was there when I was scared to death about having to share a room with another resident. She told me that I was strong enough. That everything would be okay. It was. I loved both of the ladies who shared my room with me.  Although it took a while.

She would tell me not to let a bad exchange with another person ruin my day. You see I find it difficult to let an issue go if  I have wronged someone in some way.  It plays over and over in my head on a loop, while I  am searching for a way to make things right.  Searching for acceptance. She'd tell me not to be so hard on myself.  Our sessions were peppered with the ever-popular cliches of therapists. "How do you feel about that?"  "What do you think about that?" 

If I was having a particularly hard day she'd tell me to have a piece of pie at lunch. A piece of the nursing home's cream pie, the flavor didn't matter, would make everything better.

My therapist prepared me for having a roommate. She prepared me for the transition to my current living situation. She told me I would succeed. I was on my way to a better life.  That was four years ago. August  31, 2018.

August 27, 2022, I give anything for just one more session with her.

 One thing she wished for me was that I would become close to some of the staff here in the way I became close to some of the staff at the nursing home. But here I am not allowed to develop relationships with the staff. I can't ask a certain staff member to take me out. The staff is not required to be friendly.    

There is one staff member who assists me in silence. Ignores me when I speak. I would ask my former therapist how to deal with all of it. How to remain calm when I am annoyed. How to let things roll off my back.  Having someone ignore me is one of my major triggers. My therapist knew this. I wish she were here to advise me.

I don't fit the criteria for behavior therapy. I get on the staff's nerves. There is no box to check for that. I am sure they will find someone. Then the staff and I have work to do. I am anxious to get started.

My therapist and I talked about the loneliness I might experience living here. I said it would not bother me, but I was wrong. Not being connected or interacting with the staff when they take me out is a big deal to me. The staff is connected to their phones.  I remember talking about how that made me feel in a therapy session at the nursing home. 

One more session. She'd encourage me, and help me work on solutions to the difficulties I face here.  She'd be positive, supportive, and caring. She might even give me a figurative kick in the butt.

My therapist gave me all of the tools to make it here. She told me I didn't need her anymore. I want to be the strong, independent woman she believed me to be. I can't let her down.

I became obsessed with watching telenovelas. My therapist helped me with my Spanish. In the last five minutes of each session, we'd converse in Spanish. She conversed more than I did. I tried my best. She taught me the Spanish word for shoes which is Zapatos.  The word  Zapatos is synonymous with her It fits. (pun intended) She wore the coolest shoes











  




















 

Tuesday, August 2, 2022

DISABILITY PRIDE MONTH

Image Found on Tumblr

 July was Disability Pride month. I had the entire month to write a post about it. I will be honest with you  I was not going to write about it. Until July 31st, a friend told me I'd better get to it.  There were only a few hours of Disability Pride Month left. I was binge-watching  Inventing Anna on Netflix. I took a page from Scarlet O'Hara's book. I told myself that I'd think about it tomorrow.

Yeah, I know, It's August. Better late than never, alright?

Disability Pride month is a month to celebrate and remember the pioneers of the Disability Rights Movement like those featured in the Netflix documentary Crip Camp.  They fought for inclusion, accessibility, and to be seen and heard.  I admire them. I  respect them. I thank them. Celebrate Disability Pride?   I was just not feelin' it.

I am not proud of my CP nor am I ashamed of it.  My CP just is. I don't want or need to draw attention to the fact that I am different, that I need care 24/7 and can't do the most basic things without assistance. Why draw attention to the obvious? Celebrate that?  No thanks.  

There is at least one person who supports my viewpoint.  Check out this article by  Ed Tobias who is a writer for Multiple Sclerosis Today. https://multiplesclerosisnewstoday.com/columns/2020/07/07/disability-pride-month-july- criticism/ 

It's kind of an oxymoron.  People with disabilities spend eleven months out of the year saying they're just like everyone else.  The same. But when July comes around the message changes to,"

  I would rather draw attention to my writing ability than my disability but that's just me. 

The ADA was not passed until 1990.  I began my part-time job in 1989. I fought for my college and grad school education. I had people who believed in me enough to turn an idea into a part-time job. The ADA did not exist, and yet I got a job. That is what I would celebrate. 

Enough of my ranting. In July of 2023 knock yourselves out. Have parades, march, whatever. Celebrate being disabled.  

I will be celebrating my accomplishments, not because of, but rather in spite of.

I love this video. I aspire to be like Jerry.